September 26, 2014
Today is my month anniversary of finding out I had some sort of cancer. Things are a bit slower now that we have been poked prodded and tested. My knowledge about cancer has grown larger than I could have ever imagined. Before I started my research I thought there was one type of chemotherapy. I quickly found out that is like saying there is one type of soda drink or on type of car. I also found out that if you mix them you can get a better result. My doctors have chosen a protocol or cocktail called R-EPOCH.
- Rituximab 375 mg/m2 IV on day 1 plus
- Doxorubicin 15 mg/m2plus Etoposide 65 mg/m2plus Vincristine 0.5 mg/day by continuous IV infusion on days 2-4
- Cyclophosphamide 750 mg/m2 on day 5
- Prednisone 60 mg/m2 on days 1-14; every 21d
So within the protocol there are a few drugs that have a spot in the sequence and a duration before the next one runs. While at the hospital you are connected for 5 days and your nurses are changing bags to keep it running non stop for 5 day. They hang a new bag and switch over right as soon as the old back completes.
So it all feeds into your PIC line shown here. I tried to get another color but purple is all they had. If I trace the line in my body up to my armpit I can roll it and make the tail outside of my skin move. I know sort of gross, but I had to share.
This line will be with me until the end of my chemotherapy run in January. On my days off from MD Anderson we have to flush the line and keep the insertion point clean. Kendra is doing a great job taking care of me and flushing me each night. I’m still getting use to sleeping with a tube coming out of my arm. It also have to wrap it up while strumming the guitar. If I don’t restrain it it thumps the guitar and I have an accompanist drummer.
There are a few other meds that I take to help with the chemotherapy. One shot to help with white blood cell count, another pill to help with nausea created by the chemo and there is a antibiotic to help with staying infection free.
Well thanks for reading and staying positive. I’m off to find a place that can do my blood-work locally. Fun times in Perrin Land.