Fresh Coffee is Good

Coffee, Is it good for you or is it evil? Well that just depends on who you talk to. Like everything too much of a good think will be bad for you. Don’t drink it on an empty stomach and don’t drink crappy coffee.

So after watching a few online videos Kendra and I got really interested in fresh coffee. Were not talking freshly ground, we are talking freshly roasted coffee. We watched some clips that were very informative. I could write out a lot of facts and bullet points here but its best if you watch

So that got us going on finding a local supplier who could roast green coffee and deliver 24 hour fresh roasted beans. We found a guy who roasted in his apartment and we were hooked. Sure it cost more than the “dead” coffee we bought at the local grocery store. We looked at the pros and cons and freshly roasted coffee beat the low cost vacuum sealed bags from the grocery.

We found our local coffee connection was on a break and we needed a new source for fresh roasted goods. So while sitting for chemotherapy treatments at MD Anderson I made it my personal mission to find a roaster in Houston, Texas. I did and their name is Java Pura. You can find their website at : http://www.javapura.com/
We bought some today and will be roasting it tomorrow.

JAVA PURA featured on FOX 26 Morning News from SKYLINE MOVEMENT on Vimeo.

If you are digging coffee videos here is a good one about Bicycle Coffee

Drink happy,

Derrick Perrin

Medical stats are looking good.

My blood pressure that use to be high is still holding steady. At the start of chemo I weighed in at 190. This is good. Well off to bed with this noisy chemo pump.

 

-Dp

Derrick Perrin Monster Hat

People Hold Hands Here

Today starts my last run of EPOCH-R chemotherapy. When I first learned I had a cancer and I would be taking chemo I could not wait for this week to come. Now that it is here I’m not sure if if I’m ready for it to be over. A friend of mine who has had cancer said to me he finds comfort in chemotherapy. I now know what he is talking about. For me it took a lot to sign up for chemo. I began to have confidence in the poison and realize it is the reason I don’t have a tumor and walk with a limp. I start to think where I would be if I didn’t start and you also worry about what can and cant happen when you stop. While on chemo you take on super powers knowing there will be another round and if we don’t get it on this time we will on the next. Well there have been 5 rounds and this is the last. I won’t have a next time.

I have learned a lot over the last 5 months. There is a theory out there that folks with highly acidic diets get cancer. The flip side to those thoughts is that folks with cancer have tons of acid as a byproduct. So in an attempt at humor at MD Anderson I’m going to conclude that holding hands will give you or your loved ones cancer.

How did I come to this brilliant  conclusion?

Well you cant make it across the cancer center without seeing a few folks holding hands. You walk through the Ambulatory Treatment Center, that is where you get injected with chemo, and see a loved on holding the hand of someone getting their medicine. To the cafeteria and there are hand holders there, to the sky-bridge and there are other pairs holding hands there. So if everyone is holding hands, and everyone here has cancer then we can conclude holding hands give you cancer. Right?

Well I’m going to throw that conclusion out the window with the old dish water.
Seeing everyone hold hands is comforting. I even see my own parents do it here, and they don’t have cancer. I encourage you to do it outside of here. It might lower your stress and help you stay healthy. If holding someones hand is not comforting to you then it might be time to get a new group of folks to be around.
Don’t forget to wash.

So I start round 6 of 6 today and It sends us in to uncharted territory. It almost sets me back to the point of starting chemo. At first we didn’t know what was going to happen. We didn’t know how my body was going to handle chemotherapy. Well now we know my body does extremely well with chemo. We know that it took care of the tumor that was in my body. We run this last round and we will start the process of wait and scan. The doctor will not use the “c” word for another 3 years.

-Derrick, I’m the one making folks smile by wearing a monster hat around MD Anderson.

Setting up for Christmas

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#vscocam

We are on chemo break and about to be on Christmas break, and we are not taking anything too serious.  Well Kendra has plans for home made chocolate covered cherries and that is serous business.

For our business, Big Box Pro Video Productions, we have completed a few commercial shoots and wrapping up a wedding for the perfect stocking stuffer.

We have been praying for everyone’s safe travels and for people to keep the birth of Jesus the center of attention. I know how hard it can be to be distracted by a fat man in a red suit.

Hope you have a great week. Don’t take it too serious, we are not.
Derrick

Today’s labs

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Coming in at a whopping 3 times the normal limit, my white blood cells are at 30.5.  This is down from 70 plus on Wednesday.  As my W.B.C. count drops I feel better and better. That might also coincide with getting a few days away from chemotherapy.

So labs are going good. My hip has a little pan but I think it’s muscle sourness.

Headded into the weekend with a lot of family Christmas activities on our plate plus a wedding shoot on Saturday afternoon.

Have a blessed weekend
Derrick

End of Round 5

Kendra and I just made it in from round 5 of chemotherapy. We had a good time in Houston considering the cancer and chemotherapy gig. In this video I outline some of the things going on between round 4 and round 5.

Thanks again for all the prayers and support,

Derrick Perrin

Patrick is in our prayers

I wrapped up chemo round 5 today at MD Anderson.

Derrick Perrin at MD Anderson

 

On the way to pickup the family I stopped in for a naughty snack at Chick-fil-A. The sweet lady who handed me my order asked how I was doing at the hospital. I quickly noticed I was still sporting my plastic arm band. I’m guessing the chrome dome was another dead giveaway.

She wanted to know what I have and let me know her 10 year old son also has cancer. Not 10 minutes drive down the road this lady’s son was sitting in Texas Children’s Hospital fighting off leukemia. He has has it for 3 years. I didn’t know what to say. I have been fighting for 3 months and unless something strange pops up it looks like I’m in the clear for a while.  I didn’t know if I should hug this stranger, cry, or run out the door. We traded names for prayer list and parted ways. For some reason the day I complete a chemotherapy round is always an emotional one. Patrick’s story got to me today.

So today I add 10 year old Patrick to the prayer list. He is up there with old buddy Andy Peal who is getting setup for head surgery in January.

Prayers,
Derrick

This girl

My little Sophie is getting big. She started walking this week.

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We are just about done with chemotherapy round 5. Even though we have excellent child care available we are thankful we have the opportunity to have our little ones with us. Sure they can be a pain in the rear but they bring so much more joy into our world.

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This morning Grason and I did some home school work before little monster Ben Ben woke up.

After breakfast the boys and I snuck out of the house and ran up to the donut shop on our bikes. Mama and Sophie took advantage of a quiet house and rested.

The boys took some time and figured out the gears on the bikes.

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Benjamin has a style all his own.

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So life on Chemotherapy sucks, but life one chemotherapy with loved ones around makes it all better. I get a constant reminder why I’m putting myself through this.

Now that my girl is walking I need to do everything in my power to be there when she is ready to walk down the isle. And a note to the guy at the end of the isle… If I’m not around there will be folks like Jeff Durrwachter and Kevin Hill that will put the hurt on you if you care to screw up.

We’ll back to work for now. I’m completing a big law firm video project today. Tonight after my chemotherapy disconnect I get a bag of Cyclophosphamide and hate life for 36 hours. Good news is the break before round 5 and 6 will be 5 days longer. I always start to feel really good 2 days before the next round.  Looks like I will get a week of “really good” this break.

dP

Fara Coffee – Austin TX trial

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It’s coffee, it’s swiss water decaffeinated and it’s on trial around here.

When  you limit yourself to 8 to 16 ounces of coffee per day you get selective of how good taste. It’s like beer, the less you drink, the more you are willing to spend per ounce.

We will let you know how good it is.
About to areopress some coffee now.

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-Derrick

Information I had to hear, but didn’t want to.

Quick answer – I will be back to complete my last 2 rounds of chemotherapy starting next week

This week Kendra and I have been on a fact finding mission. We are trying to find out what is best for our family. I tracked down some of the best natural / holistic / unorthodox cancer fighting docs I had access to. These are amazingly bright and gifted doctors. I was surprised at what they had to say.

When I was first diagnosed and fast tracked through the back halls of MD Anderson I felt rushed and pushed and at times like I was being kicked into something I didn’t have time to think about. I know the big pharmaceutical business plan and it was hard to not see it around ever corner. When insurance has a hick-up and you find yourself faced with over rides, extensions, and swiping cards to pay out of pocket expenses the Big Pharma machine looks evil. At that time a lot of folks were praying for healing and I also reached out for prayers that my medical team would have the knowledge and the  care to direct me properly. There have been some hurdles along the way. Twice the hospital missed giving me the right medication at the right time. There was also the morning I woke up laying in chemotherapy. That was not a cool morning, trust me you want the chemo in you and not on you.

So there I sat jumping into chemotherapy when everything I was reading told me to stay the hell away from the drug. Things changed a bit when the clinic PA walked in and explained Lymphoma to us. She saw there is some cancer in my family tree and informed us this cancer is not like any of those. She said the tumor is not like a regular cancer tumor. We went over all the nasty side effects and started running the EPOCH-R chemotherapy protocol.

After 3 runs of chemo I had a PET scan come back clean. Great, right? Not really. The doctor came back with upping my dose and wanting to hurt me even more. I was not a happy camper and had to question what he was doing. Dr’s don’t typically like that. We ran round 4 and came up with a plan to visit other doctors for 2nd opinions. Wednesday we were in Austin and Thursday Houston. Both alternative approach doctors sat down and explained things better than my MDA doctor had done.

The information given to me was not the information I wanted to hear. I wanted a maverick to set up and say “I have seen this before. Your chemotherapy is killing you. Please stop it now. Here is plan ‘B’ and plan ‘B’ is very successful”

Not even the doctor who was put on trial by the FDA want me to vary from my chemotherapy regiment. His oncologist was surprised at  the cocktail. He was also happy with the results. It seems like the prayers for guidance have been working.

I’m where I need to be and will be continuing on with upping my chemotherapy starting next Thursday. I’m not happy about it and someone might have to handcuff and drag me into MD Anderson next week, but I now know that is where I need to be.

This concludes my loose ramble about this weeks road trip. Later I will break down each doctors visit and the information I was able to gain. My Austin doctor has some very positive diet and supplement directives that will help this next round of chemotherapy. I will post on that soon.

Thanks for the prayers and the continued support.

-d Perrin

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