Category: Uncategorized

Can’t share or like someone to good health

Quit kidding yourself folks. Quit doing something to make yourself feel good when you can do something that matters. There is no way in hell you can share or like someone to good health. It doesn’t matter if a post gets a million likes…. nothing happens. Share it on every country. .. still nothing. You want to do something positive get down on your knees and pray. Don’t pray? Medatate or what’s the sissy thing folks say, “positive thought” Yea do that and you will be miles ahead of social crap.
These post are the 1980s version of a chain letter or the 1990s chain email. You forwarded that one email to 10 people and we’re did that get you? It got you on a shit list.

Please, please, please if you see someone in need please stop and take a second to pray.

I’m working down my list of thank you cards for folks who took time to pray of me and my family during my battle with cancer. Thank you and sorry for your soar knees.

Rant complete,
Derrick

Pediavance works for me

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This Pediavance stuff was a good find. Each round of chemotherapy I end up loosing fluids. If I only knew about this stuff in my college drinking days.

We will be packing and heading back to Corpus Christi today.

Setting up for Christmas

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#vscocam

We are on chemo break and about to be on Christmas break, and we are not taking anything too serious.  Well Kendra has plans for home made chocolate covered cherries and that is serous business.

For our business, Big Box Pro Video Productions, we have completed a few commercial shoots and wrapping up a wedding for the perfect stocking stuffer.

We have been praying for everyone’s safe travels and for people to keep the birth of Jesus the center of attention. I know how hard it can be to be distracted by a fat man in a red suit.

Hope you have a great week. Don’t take it too serious, we are not.
Derrick

This girl

My little Sophie is getting big. She started walking this week.

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We are just about done with chemotherapy round 5. Even though we have excellent child care available we are thankful we have the opportunity to have our little ones with us. Sure they can be a pain in the rear but they bring so much more joy into our world.

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This morning Grason and I did some home school work before little monster Ben Ben woke up.

After breakfast the boys and I snuck out of the house and ran up to the donut shop on our bikes. Mama and Sophie took advantage of a quiet house and rested.

The boys took some time and figured out the gears on the bikes.

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Benjamin has a style all his own.

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So life on Chemotherapy sucks, but life one chemotherapy with loved ones around makes it all better. I get a constant reminder why I’m putting myself through this.

Now that my girl is walking I need to do everything in my power to be there when she is ready to walk down the isle. And a note to the guy at the end of the isle… If I’m not around there will be folks like Jeff Durrwachter and Kevin Hill that will put the hurt on you if you care to screw up.

We’ll back to work for now. I’m completing a big law firm video project today. Tonight after my chemotherapy disconnect I get a bag of Cyclophosphamide and hate life for 36 hours. Good news is the break before round 5 and 6 will be 5 days longer. I always start to feel really good 2 days before the next round.  Looks like I will get a week of “really good” this break.

dP

Information I had to hear, but didn’t want to.

Quick answer – I will be back to complete my last 2 rounds of chemotherapy starting next week

This week Kendra and I have been on a fact finding mission. We are trying to find out what is best for our family. I tracked down some of the best natural / holistic / unorthodox cancer fighting docs I had access to. These are amazingly bright and gifted doctors. I was surprised at what they had to say.

When I was first diagnosed and fast tracked through the back halls of MD Anderson I felt rushed and pushed and at times like I was being kicked into something I didn’t have time to think about. I know the big pharmaceutical business plan and it was hard to not see it around ever corner. When insurance has a hick-up and you find yourself faced with over rides, extensions, and swiping cards to pay out of pocket expenses the Big Pharma machine looks evil. At that time a lot of folks were praying for healing and I also reached out for prayers that my medical team would have the knowledge and the  care to direct me properly. There have been some hurdles along the way. Twice the hospital missed giving me the right medication at the right time. There was also the morning I woke up laying in chemotherapy. That was not a cool morning, trust me you want the chemo in you and not on you.

So there I sat jumping into chemotherapy when everything I was reading told me to stay the hell away from the drug. Things changed a bit when the clinic PA walked in and explained Lymphoma to us. She saw there is some cancer in my family tree and informed us this cancer is not like any of those. She said the tumor is not like a regular cancer tumor. We went over all the nasty side effects and started running the EPOCH-R chemotherapy protocol.

After 3 runs of chemo I had a PET scan come back clean. Great, right? Not really. The doctor came back with upping my dose and wanting to hurt me even more. I was not a happy camper and had to question what he was doing. Dr’s don’t typically like that. We ran round 4 and came up with a plan to visit other doctors for 2nd opinions. Wednesday we were in Austin and Thursday Houston. Both alternative approach doctors sat down and explained things better than my MDA doctor had done.

The information given to me was not the information I wanted to hear. I wanted a maverick to set up and say “I have seen this before. Your chemotherapy is killing you. Please stop it now. Here is plan ‘B’ and plan ‘B’ is very successful”

Not even the doctor who was put on trial by the FDA want me to vary from my chemotherapy regiment. His oncologist was surprised at  the cocktail. He was also happy with the results. It seems like the prayers for guidance have been working.

I’m where I need to be and will be continuing on with upping my chemotherapy starting next Thursday. I’m not happy about it and someone might have to handcuff and drag me into MD Anderson next week, but I now know that is where I need to be.

This concludes my loose ramble about this weeks road trip. Later I will break down each doctors visit and the information I was able to gain. My Austin doctor has some very positive diet and supplement directives that will help this next round of chemotherapy. I will post on that soon.

Thanks for the prayers and the continued support.

-d Perrin

New day, New doctor.

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Today was great. I will elaborate more later but just wanted to let everyone know we are talking with doctors this week and coming up with cancer action plans.
I didn’t hear what I wanted to hear today, but I did hear what I needed to hear today.
I’m going to get some real world work done and should have a video for you on Thursday.

Take care now
Derrick

Still Running Drugs

I’m sitting here getting a new bag and trying to figure out some research on my chemotherapy protocol.
It all seems to be uncharted territory. The protocol has only been used for 7 years so we don’t have a lot of information about long term issues that typically pop up with other chemotherapy drugs.

Take care,
Derrick

Video update – Md Anderson update 10.09.2014

MDA Giftshop

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They sale a lot of great things in the gift shop, but this cool sticker is not one of them. To get one of these you have to go in for a few days of iv fun.

2 clots can’t keep me down.

Sorry for not updating you sooner. I’m ok and lived to enjoy my family another day. We did, and still do, have a major concern regarding my right arm. I have an IV line that was set to stay in me till the end of all my chemotherapy rounds. We have been carefully flushing and caring for it since we left MD Anderson.  Two days ago a few spots in my arm got soar. I grew up trying to be tough but life with cancer doesn’t afford me the opportunity to take one for the team and keep trucking. Any little issue is a big issue in my life. So I checked my pride at the door and went to the minor emergency center to be examined. They had concerns and bounced me for a sonogram. The sonogram tech can’t say anything but the way the scan went I could tell something was not right. They bounced me back to the urgent care clinic and they to the ER. The ER folks differed to MDA and after a while I got a blood thinning shot in the gut and a prescription to have 2 per day till I get my line checked at MD Anderson. 

So my blood is working at anticoagulation. We hope this reduces the clots and won’t lead to the clot moving to another location. I shoot up morning and night to make all this happen. I had to get over the fear associated with jabbing a sharp needle into my tummy fat and pushing a drug. Once you realize it is tummy shot or more blood clots you stick it and forget it.

So it’s somewhat normal now in Perrin Land. We were not planning on a trip to Houston till chemotherapy time, but it looks like we will be there on Monday. Plans are for me to get the pic line pulled and then catch up with Kendra and the kids at the Houston Zoo. We might make it to the Big Thicket on Tuesday if things go well. If we plan anything than being in Houston often our plans get tossed out the window and we are needed back in Houston.

Hope this fills you in. If cancer was only about taking your medication and eating right this would be easy. You have medication for you medications and a big road of unknown hurdles you have to jump. You don’t know when or if you will start to have side effects. Just a lot to learn and there is no manuals for me.

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